The NewFace Foundation

  A Non-Profit Corporation that Benefits Children Born With Facial Deformities

 

 

 

Craniofacial Deformities

Multiple Facial Clefting

Precious (Yes, that is really her name), was born with multiple facial clefts.

A new picture of Precious will be posted here soon!

Goldenhar Syndrome

(Ocolo-auriculovertebral dysplasia)

Tina was born with Goldenhar Syndrome.  In the picture to the left, Tina was 15 years old and had been told nothing else could be done for her. Then, she met Dr. Paul Howard.  Tina is a computer programmer, and a volunteer for the NewFace Foundation.

 

Craniosynostosis

Craniosynostosis is the premature fusion of a cranial suture that results in a lack of growth in a particular direction of the skull.  There are many classifications  of the different types of Craniosynostosis.  These  classifications are as follows:

Trigonocephalies: Distinguished by the triangular shape of the forehead (metopic suture).

Scaphocephalies: present as a transverse narrowing of the skull with a sagittal elongation (sagittal suture).

Plagiocephalies: asymmetrical.  The forehead is usually flattened and retropositioned on one side, often deforming the  rest of the skull and the face as well (coronal suture).  There are further classifications of this coronal synostosis:

(1) Brachycephaly - sagittal shortening of the skull and cranial base.

(2) Oxycephaly - presents as a "pointed" head.

(3) Turricephaly - present as an excess of skull height with a vertical forehead.

 

Pictures coming soon!!!!!!!!!!!!!!!!!!!!!!!!

(Reference: Craniofacial Surgery for Craniosynostosis by Daniel Marchac, MD & Dominique Renier, MD

1982, Little, Brown, & Company, Boston)

Microtia

Microtia is a congenital ear deformity where the outer ear (the pinna and the external auditory canal) has failed to be developed.  Ears can be reconstructed in three operations, each six months apart.  In the first surgery, cartilage is grafted from a rib and placed under the skin of the area where the ear is to be reconstructed.  The second surgery involves a "sculpting" of the cartilage placed in the first surgery.  The third surgery finalizes the construction of the ear.  Timing of the first surgery can be around 5 years of age. 

Pictures of the surgical sequence coming soon!!!!!!!!!!!!!!!!!!

 

Coming Soon:

Apert Syndrome, Crouzon Syndrome, Treacher Collins Syndrome, Holoprosencephaly, and more!!

For more information about craniofacial deformities, we recommend the following link:

www.cappskids.org

 

 

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***The NewFace Foundation does not pay for adult cosmetic surgery.   This Foundation benefits Children Born With Facial Deformities.  Please do not contact us if you are an adult seeking financial assistance for cosmetic surgery. 

Send mail to CleftLip@aol.com with questions or comments about this web site.
Last modified: 10/07/05